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Chasing the Intact Mind by Amy S. F. Lutz (Hardback)
£26.99
Out of stock
Product Ref. (e.g. ISBN, SKU)
9780197683842
Published:
15 Feb 2024
Format:
Hardback
Number of pages:
180 pages
Dimensions:
164x242x21.3mm
Weight:
0.417kgs
Author:
In Chasing the Intact Mind, Amy Lutz traces the history of the "intact mind" concept, explaining how it influences current disability policy and practice in the United States. Lutz describes how we got to this moment, where the severely autistic are elided out of public discourse and the intensive, disability-specific supports they need defunded or closed altogether. Lutz argues that focusing on the intact mind and marginalizing those with severe disability reproduces historic patterns of discrimination that yoked human worth to intelligence, and that it is only by making space for the impaired mind that we will be able to resolve these ongoing clashes--as well as even larger questions of personhood, dependency, and care.
A comprehensive introduction to the concept of the "intact mind" and how it affects disability policy and practice.
The concept of the intact mind, first described in a 2006 memoir, refers to the idea that inside every autistic child is an intelligent, typical child waiting to be liberated by the right diet, the right treatment intervention, the right combination of supports and accommodations. The sentiment itself is not new. Emerging largely out of psychoanalytic theory dating back to the end of the 19th century, the intact mind was later amplified in memoirs, where parents wrote of their tireless efforts to free their children from the grip of autism. Though the idea gives hope to parents devastated by a child's diagnosis, Amy Lutz argues that it has also contributed to widespread dismantling of services badly needed by severely disabled children and their families.
In Chasing the Intact Mind, Lutz traces the history of the intact mind concept, explaining how it influences current policy and practice affecting those with autism. Lutz provides a historical analysis of the intact mind narrative and describes how the concept--originally unique to autism--has come to inform current debates at the heart of intellectual and developmental disability practice and policy in the United States, including battles over sheltered workshops, legal guardianship, and facilitated communication. Lutz argues that focusing on the intact mind and marginalizing those with severe disability reproduces historic patterns of discrimination that yoked human worth to intelligence, and that it is only by making space for the impaired mind that we will be able to resolve these ongoing clashes--as well as even larger questions of personhood, dependency, and care.
About the Author: Amy S. F. Lutz, PhD, is a historian of medicine at the University of Pennsylvania. She has written about severe autism for many platforms, including The Atlantic, Slate, Spectrum, and Psychology Today, as well as in two previous books: We Walk: Life with Severe Autism (2020) and Each Day I Like It Better: Autism, ECT, and the Treatment of Our Most Impaired Children (2014). She is Vice President of the National Council on Severe Autism and lives outside Philadelphia with her husband and five children.
| Number of pages | 180 |
|---|
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| EU | £15.00 | £30.00 |
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